10 Jun 2016
SBE Silence Speaks Day raising money for Motor Neurone Disease
On the 16th June, SBE is hosting a ‘Silence Speaks’ Day to raise money and awareness for the Motor Neurone Disease (MND) Association. The event is being held in support of Professor Mark Hepworth from SBE who was diagnosed with the disease in 2015.
Here is Mark’s story:
“I realised something was wrong when I was over laughing more than was warranted by the occasion and my speech started to slur. After many tests I was diagnosed with MND. For me the disease has been quite rapid and now I find it difficult to walk, talk, eat and drink. The hardest part is not being able to communicate as my speech has really deteriorated, so I now have to use a portable white board. My mind is as good as ever, but my body isn’t. I’ve made the most of my time by visiting Africa, Japan and parts of Europe”.
Each day up to six people are diagnosed with Motor Neurone disease and affects around 5,000 people in the UK alone. There are no cures for this disease and it can leave people locked in a failing body, unable to move, talk, swallow and eventually breathe.
Throughout the day on the 16th June there will be events going on within SBE hoping to raise money and awareness of the impact MND can have on your life. One of the events will be an ‘Electronic Silence’ where staff members can donate to the cause and not respond to emails for a section of the day. Additionally there will be a ‘silent’ cake sale from 11am-1pm in the reception. Additionally staff memebers are being encouraged to find small ways to take part such as team silence in the office.
Additionally, if you would like to donate to the cause, head to the Just giving page here: https://www.justgiving.com/fundraising/SBEsilencespeaks
Follow the coversation on social media through #SilenceSpeaks.
To contact the Publicity Team, please ring Mrs Ondine Barry on +44 (0)1509 228849 or email firstname.lastname@example.org